March 21st 2012
As I am finally able to gather my son and myself and make our way to the car, I am in a total shock. I manage to get us home, all in one piece but I do not recall the drive. I manage to maintain a someone normal day, reassuring my son that all will be okay. Trying to keep myself off the internet, now that was challenging and no, I did not stay off the internet. Once the little man was down for the night, the laptop came on and I was like a mad woman trying to search everything and anything I could find on Diabetes. Now at this point, I have no idea that there is more than 1 kind of Diabetes and his Dr did not express anything other than "you have Diabetes".
So the race is on and the search begins. If you've ever done a search for Diabetes you will know that mostly everything is geared towards Type 2. So mostly everything I read that night was for Type 2 and I have hope. Okay, my son is diabetic, exercise, diet, we will be good. Now mind you, for the majority of my son's life, I have fed him organic fruits and vegtables, organic meats and he didn't even like cakes and cookies until he reached the age of 6 or 7. He has played sports since the age of 3 and has always had a tall lean build. However, as I research this "diabetic monster", I am filled with hope that this wont be so bad. All I gotta do is get him in the gym more, Ill get him on a 2nd sports team and no more McDonalds. Done. We are good. To bed I go.
Wake up and reality sets in. Oh damn, Diabetes, its still here and we have to go to the Endo and fix it. I remember getting to the Endo, my best friend Kris was there, I refer to her as Thelma and I am her Louise! My son's father was there as well. We all sit in this waiting room to hear the fate of my beautiful child. Small talk at its worst and into the room we go.
My son is up on that table thingy, Thelma sitting in the chair and his dad across the room leaning against the counter. I am sitting on that table thingy behind my son. Okay, here we go, Dr Haunke comes in the door. I look at this Dr and am in awe. Really? Is this a joke? How old are you? 12? Talk about Dr. Doogie Howsie. So your supposed to be the man that is going to tell me about my sons fate. You have got to be kidding me you cant be more than 12 years old.
Here it is. The facts. The brutal freaking facts. You cant run, you cant hide, there it is, hitting you in the face, your son is Type 1 Diabetic. There it goes, there goes my heart sinking to my stomache. Okay, what the hell is Type 1. Here goes the Dr with his freaking medical terms, auto ammune disease, pancrease, honeymoon phase, insulin, injections, correction doses, bolus, basil, meters, pokers, Glucose levels, hypoglycemia, hyperglycemia, ketoacidosis, keytones blah blah blah. WTF are you talking about. Your 12, use laymens terms you jerk, I dont need you to try to impress me with your medical terms. Im 40 and I am not smarter than a 5th grader so stop showing off you 12 year old fetus Dr. I have no idea what the hell you are saying and your pissing me off. Breath Christine, breath, dont hit the Dr. Breath breath.
Okay, Dr Doogie Howzer, you say his "pancreas" does not work. Okay, I get it. Okay then, take my pancreas, give it to my son. Easy. Done. How can we get this scheduled? Better yet, take his fathers pancreas. Its not that simple Christine. Of course it is, they do heart transplants, liver transplates all kinds of transplants, take my son's fathers pancreas and give it to my son. I thought that was a brillant idea. Ya, well I guess it doesn't work like that. So for the next 30 minutes we listen to this Dr spew out words of T1D and I start to panic and I realize my little 9 year old son is sitting her listening to this crap. Thelma, yes Thelma, can you please take Michael out to the waiting room so we can talk to the Dr in private. Of course. Thelma then take my beautiful son to the waiting room. I look at my son's father and say "is our son going to die"? His response "I dont know". What the heck do you mean you dont know? Your supposed to know and if you dont know, your supposed to lie to me and tell me "no, he is not going to die, our son is going to be fine". Thats your job "dad", your supposed to be the pillar of strength but no, there you go telling the mother of your child "I DONT KNOW".
Well in comes Dr. Doogie in the door again and I remember blurting out "IS MY SON GOING TO DIE?". No, your son will not die. He is going to live a long and healthy life and do everything that everyone else does. You will just now be his Pancreas. Oh! Really? My son is not going to die, everything else is do-able. I can do this, I can be his Pancreas. By the way, what the heck is the Pancreas??
Well for the next 5 hours my son, his father and I sit through our diabetes training session with Mary lee! Head is spinning as I am taking a drink of water from this fire hose of information. Poke here, put blood there, read meter here, count carbs here, dial up here, inject there, poke poke poke, honeymoon phase, oh, and exercise...ya thats another thing. So I sit here listening to all this information, get a boat load of "stuff" to get us through the night, books, meters, pokers, lancets, insulin, night time insulin, strips, I cant believe all this stuff.
Well now its time. Yep, time for his very first shot. Okay, Michael, do you want to do this yourself or do you want mom to do this for you Marylee asked of my son. "I can do it" I hear come out of my son's mouth. Wow! My brave little man. Okay, here you go. Dial up your pen to X units and take the pen, inject in your tummy and it will be all done.
Iam sitting to the left of my son while my sons dad is to the right, closest to the door. I watch my son pull up his shirt with this big ole insulin pen in his right hand. I look up at my son's father and I see the tears in his eyes. He cant take it. He cant watch. His baby, about to inject a needle in his stomache is too much to bear and he leaves the room. Iam now in "Mamma Bear" mode. Gotta take care of my cub. I watch my son stick the needle in his stomache, push and inject the insulin....WOW! He is so brave. My little man, so brave, so strong, so sweet, MY HERO.
After dealing with "D" for almost a year I thought it was time to share our story. We are not bloggers, if fact I have never blogged before....a glimps of a day in the life of a diabetic child...
A Mothers Anthem
I am the mother of a diabetic child. I don’t know what it’s like to go to sleep at night and know for certain my child will wake up in the morning. I don’t know what it’s like to sleep the whole night through without waking up to do blood tests on my sleeping child. I don’t know what it’s like to prepare a meal without a calculator, measuring cups, and a gram scale. I don’t know ...what it’s like to drop my child off at school and know he will always be in the care of someone who knows how to take care of him. I do know what it’s like to force feed sugar in the middle of the night knowing I am sacrificing my child’s teeth to save his life. I do know what it’s like to draw up insulin at 2 am and pray to God I’m not too sleepy to make a fatal error in judgment, technique or calculation. I do know what it’s like to sit underneath the dining room table holding my sobbing child, explaining to him, “No, we can’t take a break just this one time.”while I inject insulin into his already bruised arm. I do know what it’s like to walk away from the pharmacy counter with an armload of supplies and realize I’ve just gone through another box of 200 syringes. I do know what it’s like to help my child march bravely past the juice and cookies at the school reception that was supposed to be his reward for achieving Student of the Month. I do know what it’s like to look into my child’s eyes and tell him he has an incurable disease and explain to him what that means, And then to be comforted by him when I’m the one who can’t stop sobbing. I do know what it’s like to love and cherish my child every minute of every day, to know that I may someday donate a kidney to him, and that if he were in need of a heart, mine would be out of the question, because it broke a long time ago.I am the mother of a diabetic child. Author: Unknown
I'll never forget that day! All I could think was, Dougie...GO GET YOUR DAD! You are so wrong! You have your nurse stick my perfect nephew with a needle and then you come into the room and start in with the T1D talk??? Do you know what you are talking about? We need tests...real tests! Where are all the complicated lab work tests? How can this be? NO NO NO!!! Michael is active, in sports, in shape, always ate right…liked vegetables more than sugar! WTH???
ReplyDeleteAs Louise and Robert wait for the 12 year old of a Doctor come back into the room, Michael and I go out to the waiting room. As I am prepaid to distract him he looks right at me and asks me point blank, "So I have diabetes?” I sit there like a dear in head lights...I have a choice, stall, lie ...Yes, honey you do...I have never lied to him nor held back the truth. He looks at me like I told him he had a common cold and proceeds to dial his cell phone..."Grandma? I have diabetes"...Uggg! He had no idea what it meant...My heart sank...what is he in for? I had a small introduction to T1D with my grandpa...I still had no idea what my best friend and her beautiful son would be facing...What they have had to faced and are facing each day is something I wish on no one!!!